Tuesday, May 25, 2010

BT, ST, OT and many more

BT, ST, OT??? What does this all mean you ask?? These are the abbreviations for the different therapies that Isaiah goes to. BT stands for behavioral therapy. That is to help with the ADHD. We talk about things that might help simplify his life to reduce the number of outbursts and help him stay focused on more things. ST is speech therapy which is helping him with the sounds he can't make right now with his mouth. His favorite color in Isaiah's language is yeyo (yellow). And it's dama to him instead of grandma. And then there is OT which is occupational therapy which is to help him with his fine and gross motor skills. He has a hard time dressing him self everything is backwards. And eating is a challenge, he can't hold his utensils very well. He also has a hard time writing, which isn't a real big concern because he has another year of preschool but if it continues then it will need to be addressed more seriously. And we wanted to work on his clumsiness but the OT therapist wanted his vision checked first. So today we went to a Developmental Optometrist to have his depth perception tested and he is indeed far sided. That explains a lot! He spill s everything on the table and he runs in to things. And that's because he couldn't judge how far away things really were. So the answer to that problem is glasses. So he was fitted for them and he should have them in two weeks or so. I wasn't really surprised at this point. I mean I know that there is always something more with Isaiah. You can never go to an appointment and leave with out something new to grasp about him.

But on the flip side things could be worse! I heard about a little boy this week who is 5 and has the same liver disease that Isaiah has. But his condition is worse. His liver didn't heal itself after surgery it just made things worse. His hart had to over compensate for the liver which in turn caused a hols in his heart. And then he got an enlarged spleen. So now he is in need a of a living donor to donate part of their liver right away. So they had this benefit concert tonight to raise money for all his medical bills and I thought what a great way for us to help someone else out there more deserving than us. And yes people it's hard to think there are such people but there are!! So I talked to the boys about giving some of their money in their piggy banks to this little boy who is sick. And Isaiah with his sweet spirit said he can have it all!! Micah was hesitant at first. And I had to explain to him if that were Isaiah we would want people to help us out. So he agreed to one dollar. But Isaiah still insisted on all of his money going to this little boy. And then on our way out to the car I told my neighbor what we were doing and she dug into her purse and gave us all her cash which was five dollars. I mean how generous. She had no idea who this kid was she just did it because! We didn't make it up there to the benefit due to car troubles (explained in following paragraphs) but we are going to the bank first thing tomorrow to put the money in the account set up for this little boy. It's amazing how much this means to Isaiah. When I explained to him this little boy has the same Liver problems you do, and that he was very sick and need money to pay for the doctors to fix him he was more than willing to give his $20.47.

So yes my car died on the way to the benefit! I have had so much trouble with my car lately. It stalled on me a while a go and when I took it in they said they couldn't find anything wrong with it on the diagnostic test. So it didn't happen again after that for a while. So when we got ready to go to St.George two weeks ago, I had my mechanic look at it and check the A/C also. And he said it was fine. So in St.George I only had one time it stalled and then it was fine. But when I got home it stalled a lot. So I took it in again and they said the diagnostic showed nothing,but my fuel filter needed to be replaced. And then I was fin until today, and I was on the freeway and it died two times. So then I turned around and took side streets home and it was fine. So mow I have to take it to the dealership to see what's wrong with it. Ughhhhh!!! I really hope they find whats wrong and it doesn't cost an arm and a leg. Because if it does I might as well get a new car, right?? No, we can't afford that with all that goes on with Isaiah but, then I need my car to get Isaiah to all of his appointments. I really wish we could go down to one car but we can't. Dwayne's car wont fit all the kids, and he works nights so he can't take the bus or Trax to work. It doesn't run late enough for him at night. Sometimes life isn't what you expected but you just roll with it. My house won't be clean all the time, Sariah won't have a nap schedule except for riding in the car to and from appointments for Isaiah. And Life is chaotic right now. I guess now after my little pitty party, I'm saying I need help finding a good deal on a new car(pref, mini van). I need one that has low miles and doesn't need work done. And needs to be between $2,000-$10,000. If you can help me post a comment or e-mail me. Oh and if you know anyone who wants a 2001 BMW 325. Black 4 door. Let me know I really want to unload Dwayne's car. It just isn't practical for us right now. I know this is a long post, but if you read my blog thank you for listening when I just need to vent!!

2 comments:

Nat said...

Anna, I'll keep my eyes out for some sweet mini's! You are such a trooper, seriously don't know how you get it all done. Let me know if I can help you with anything. If you have any appointments later in the day or around lunch time I can help you out with a car or babysitting or whatever! :)

Shannon said...

Anna,

I've read all of your posts on your main page. Thank you for inviting me to read it. Your post on my blog really touched me. Don't be too hard on yourself. I think this is hard for all of us and we are all meant to be here cheering each other on. I have been amazed and had my eyes opened with how many people are dealing with children who have many different special needs. I joke and maybe I am only so positive bc I am just getting started in this whole thing and don't realize what I have ahead of me! :) I hope that's not the case, but it may be a bit. I am nervous and get overwhelmed too. I have a hard time just being a mom sometimes so I know it is really going to challenge me. But I will give my best and I know where strength comes from! You are a great mom to your boys and I really hope Isaiah gets better and will always be okay. :) What a sweet sweet story about him giving all of his money to the other boy. Very sweet, What an example. And what a good mom! :) Thanks again for sharing and making my night. :)